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19-11-2009 20:19 hour
jason wendy logan and mikayla ( np )

hi guys - we are all sooooooooooooo happy for all of you -  just to be back in a normal bed with family around and not nursing staff is a great start to the future.  time to recharge the batteries and also kick back and relax for the next few weeks till xmas and then let yourselves regroup and rethink the future after all that takes place. you can give yourselves some much needed r & r without feeling guilty.  logan had his tonsils recheck with the specialist on tuesday he is very happy with the results, we got him to check out mikayla while we were there (she was at the drs on sunday with more ear troubles) and he is putting her on a recheck list in jan then grommets sometime next year - here we go again with child number 2 - gettin on top of it earlier this time round.  She got attacked by our cat "noodle" tonight, she easily pulls her fur as she is a smoochy cat and she has zero tolerance and goes into swipe mode very quickly.  man she got a lashing of scars and scratches all over her bald head - screamed lots and bled some too - but otherwise i cant imagine it will be the last of her receiving the "attack" of our cat "noodle" (live and learn - not yet - this is the second time for her !!!)  love and hugs jason wendy logan and the battle scarred mikayla.

19-11-2009 16:51 hour
Loma Tito ( Hawera , New Zealand )

Hi to Rory and family.  I went into Hell Pizza in New Plymouth last week and came across the arm bands for Rory.  I then got on my phone text all my family and walked out with 8 bracelets LOL.  It broke my heart to see that another child had been affected by Cancer.  We too have been through what you are going through now.  Our 7 year old daughter was diagnosed with a Brain Stem Glioma on the 26th September 2007 and lost her batlle on the 18th June 2008 when she was 8.  We spent alot of time at Starship also.  I think about you all often and keep updated by reading your page.  Be strong and as hard as it is you will get through it.  KIA KAHA RORY. 

19-11-2009 15:30 hour
Vania

Hey Rory and family, how wonderful to finally get a breather.  All the very best over the next couple of months.  A wonderful time to regroup and recharge.  Thinking of you all.

18-11-2009 21:38 hour
Trudi Johnston ( Dargaville , New Zealand )

Hello,  I hope you have been able to move North!!  I have just been taking a trip through all of your photos on the website.  Man have you guys been on a journey.  I have to admit I have had a few tears!!  The photos tell a story, which is still not finished. 
I think Rory the day you are having your line removed it is DPS prizegiving (last day of the term too!)  Have you managed to write to Santa yet with a wee wish list??
Kody came home from school yesterday pretty proud of himself.  They had some high jump trials and Kody made it through to the next round even though he is not 8 yet!  But today he came home a bit deflated he forgot to go to the next round of trials today!  He was hoping he might of made it through to the finals,  you never know.....
Will keep you posted on that one, it all takes place on Thursday next week.
Having the ear putty put in your ear did not look like it was very nice!  Excellent facial expressions!    Well rest up Keep being strong and enjoy not being poked and prodded!!  Time for some family R&R I think!  You have ALL derserved it.  Nighty Night xxxxx

18-11-2009 14:16 hour
julie josh mitch zane williams ( Whangarei )

Big positive vibes to you all. i sent a donation last week to the Starship Foundation whilst thinking of you all and the amazing work done by the staff there. Address for others to do the same is www.starship.org.nz/foundation.Also amazing Xmas cards for sale part of profit going to Starship - www.spectacularcards.co.nz.
We are all blown away by the strength of all 4 of you. I'm sure the way you've all been there with each other has helped.
Congrats on this milestone - onwards positively  from here. Julie

17-11-2009 13:40 hour
jane c ( Whangarei )

You made it back to RM house! Way to go you guys... all of you should pat yourselves on the back... thinking of you all 

16-11-2009 20:36 hour
Brenda

Yay. I'm so pleased for all of you. Thinkin of you. Brenda

15-11-2009 20:16 hour
The Johnstons ( Dargaville , New Zealand )

Good Evening from WINDY DARGAVILLE!!  Phew its blowing hard here tonight!!  All the children are tucked up into bed after a very busy weekend.  Kody went off on an exciting adventure with Gordon, his Dad, David and Korie on Saturday to camp out overnight at a Bay north of Whananaki.  Kody arrived home thisafternoon exhausted!  After exploring rock pools, swimming and having lots of fun.  Gordon said they had heaps of fun and Boy can Kody SNORE!!  It was so bad Gordon had to sleep out under the stars! until it got too cold and he had to venture into the tent!  Ben went along to a birthday party down at the Pirate Ship and then lastnight we (minus Kody) all went out to a friends house for a BBQ.  They had great big mounds of sand around their yard so all the kids played well into the night.  We came home at about 11 with 2 very tired, grubby kids!  I even managed to sew some of the DPS Kapa Haka girls skirts (A job Whaea Danielle had me unknowingly volunteer for!)
It sounds like you are all itching to get out of the ward and I hope this happens soon for you!  Just keep putting one foot in front of the other.  Hopefully life will get a bit easier for you.
Well take care, and we send down our usual dose of strength, love happiness and high levels of what you need to get out!! 
Always, Us xxxxx

14-11-2009 07:37 hour
jane c ( Whangarei )

congratulations Rory on making it through the hardest thing you will ever have to do - just let us know what you fancy and we can make some concoctions (nothing like the playdough scones we used to turn out at playcentre) i make a mean batch of chocolate chippies - just sayin'...hardly seems fair after all the cr%p you have been through to have to start making all those decisions... still i guess they give you some control over your lives again...anyone who could have either of you guys working for them would be bloody lucky... 

12-11-2009 22:12 hour
The Johnstons ( Dargaville , New Zealand )

Well that news is all very exciting!....for us I know you still have a big journey in front of you and Big decisions to make.  The time will come when you may taste freedom again!!  Looking forward to that for you all.  And yet another hard 0decison to make over the MRI.  You continue to be an inspiration to alot of people Leigh.  I have never met anyone so strong and full of courage. 
We have had a lovely day here today.  Kody had Adam come after school for a play, needless to say our house was full of noise and action.
This morning Ben accidentally squashed Stellas hand in the wardrobe door! (The morning turned to custard from then!) It looked pretty bad but seemed to come right after about 10 minutes, we are expecting a big bruise!! 
Returning home to Whakapara will be lovely and scary for you too.  Goodluck Rory with the reintroduction of food!  and hopefully you dont have to wait long to have the hickman line removed.
Keeping the strong ones coming your way, Lots of Love Trudi and the Crew xxxxx