16-12-2009 06:45 hour
Jo Brimelow

Woke up thinking of you guys, fingers and toes crossed all goes to plan!

16-12-2009 06:23 hour
Ms Bishop

All the best for today. Fingers crossed.

15-12-2009 22:32 hour
jason wendy logan and mikayla ( np )

hi there again, just touching base before you go in for the op, hopefully all will go ahead as per scheduled on the day.  Thinking of you all and sending you lots of love and hugs,  Logan is waiting to catch up with both sam and rory for xmas he just loves to see his cousins and spend xmas with them being boys - you know how they are !!! last 1/2 day of school tomorro, he cant wait.  take care and see you all soon - love and hugs jason wendy logan and mikayla 

15-12-2009 08:43 hour
jane c ( whangarei )

admiring your self control Leigh (maybe you could do some silent screaming - i used to do it when the girls wouldn't go to sleep in the middle of the night... walk off by myself and act like i was screaming as loud as i could without the noise - surprisingly satisfying and noncertifiable as long as no-one else sees you)
sending good outcome vibes for the op....
way to go with the therapy and doing that puzzle with your left hand Rory!

14-12-2009 14:30 hour
Denise Carey ( Kerikeri , New Zealand )

My 14 year old stepson was diagnosed with a malignant brain tumor on 5 August this year.  He has just begun his chemotherapy.  We would like to send Rory a t-shirt from our own fundraising campaign.  Where is it best to send it?  Our hearts are with you.

10-12-2009 11:33 hour
Vania ( Australia )

Happy Birthday Sean!!!  Hope you had a good one.
Fear is not failure.  Soon we are flying back to nz, and the kids will have to hold my hand and make me brave... they just think its hilarious.  Family - there to support each other.

08-12-2009 16:28 hour

 The only way you could let Rory down is to give up!!!
I don't see that happening, so cut yourself some slack. Brenda

07-12-2009 21:52 hour
The Johnstons ( Dargaville , New Zealand )

Leigh, Leigh, Leigh
Where to begin....Nobody should have to endure what you are going through.  I often find people ask me about you all and how you are all going.  I start off with Rorys progress, tell them about the website so they can keep up with it all, and add...every time... what an inspiration you are and to take the time to read your updates.  I believe you have changed the way alot of people live their lives.  So to find yourself having to take a few moments to regroup yourself or to freak out a little is NORMAL.  I agree with the others your children need to see how you react in all situations.  Crikey I got sweaty palms just reading about the obstacle course!  As Mums we all have moments we probably regret but that makes us human.  So keep on Leigh, Sean Sam and Rory LOVE you!   Right now I am sending you a big hug, take it and know we all love you and are right here if you need to have a moment! 
Kody absolutley loved the weekend!  Highlights for him were the hydroslide and the obstacle course.  He had to have today off school to recover!  Lots of Love Trudi Brian Kody Ben and Stella xxxxx

07-12-2009 20:04 hour
Jeni Gorrie ( Dargaville )

Oh my goodness Leigh, if only you could see yourself from where we sit. I'm sure a piece of my heart has fallen off while reading your last entry. I could just sob, but here I am swallowing it down so that my family don't ask me what's wrong...then I would have to explain it and I don't know if that's possible. Janes words were so true, if Rory only sees strong Mum, he won't have opportunities to help you like you help him. When we are in a dark place, sometimes the best way to move through it is to feel needed. That goes for all of us, including children. As a woman and a mother I relate to everything you write. I also am in awe of the things you do and have done from day 1. For some people, after being traumatised as your family has, just to leave the house is too have done so much, and you are hard on yourself because perhaps if you let go for just a moment, you may crumble. Even if that did happen Leigh, you would get up again. Pleeease love yourself, so that we all may continue to love you too.
Jeni. x 

07-12-2009 16:54 hour
jason wendy logan and mikayla ( np )

hi again,  i am with you there leigh on the heights - just ask logan i get dizzy, queezie and sick with heights and that is just me looking up from the ground up at something that is tall - I am the biggest wuss with heights so maybe I can keep you company on the ground!!!  Just read your blog for today, and I can only say you need to be proud of all the hours you have endured so far - as parents yes you go the extra miles to do all you can, and the heartbreak involved is always high.  But there is light at the end of this tunnel - you have given a million percent so far and rory and sam have wonderful courageous parents to show for it.  No-one expects you to be the hard shelled bullet proof mum that you always seem to be - everyone has a breaking point and yours has been tested over and over again in the last many months.  Dont ever feel like you are failing - not the case you are being a mum and a damn great one at that - and sean and you are doing amazing things to make your boys both very lucky and proud to call you their parents - if only every child in the world could be so lucky !!! love and hugs wendy jason logan and mikayla