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12-09-2009 14:57 hour
Susan Sadler ( Houston, TX , USA )

Hello Rory and family! I happened upon your website, and have walked in your shoes. We lost our wonderful, sweet, goofy son Zach to Medulloblastoma in January of 2008. Zach had many, many complications and was almost completely immobile for 15 months.  This is not typical, and I hope and pray that Rory will beat this beast as many children do.
I was Zach's primary caretaker (his Dad had to work and we had to send our 2 year old daughter 850 miles away to live with my sister). Zach was trached, had a g-tube, could not speak, and for the most part, could not move. It is so very hard to do on your own. Looking back now, though, I would give anything to be able to do it again, having Zach recover. Take a little time for yourself whenever you can. I wish I could be in NZ to help!
Anyway, just wanted you to know that strangers from the USA are praying for your son's recovery and for strength for you.
Susan Sadler, Mom to Zach, forever 16

11-09-2009 11:17 hour
Zackary ( Dargaville , NZ )

To? Rory
Thank? you?? for? my? cup? and? as? soon? as? sam? gave? me? it? I? used? it.

11-09-2009 11:01 hour
jane c ( Whangarei )

oh bugger off rotovirus and spewing (oops i might not be supposed to swear on here... too bloody bad)
 
i hope those new feeds are giving you some more energy now Rory... you had such a pool of energy and shine to draw from ... will keep sending you some energy in the only way i know how... hoping you feel it and feel replenished soon
Leigh, it keeps echoing around in my head what you said about wondering where you have gone... i wonder if where you have gone is into a tunnel .. you are using the strength and connection you have to "earth" all the suffering you are going through as a family... and when you come out the other side of the tunnel you will be more whole ... you are using up superhuman energy to get through this place....you haven't disappeared ... you are bigger than ever - it is just that it is dark where you are at the moment and you just can't see so well...
 
arohanui     

11-09-2009 10:03 hour
Kalisha,Michaela and Brody M ( Dargaville Primary School , New Zealand )

Hello Rory,
We know you'll get through this soon,so we wish  the best. We hope you come back to school soon,as we're missing you lots. There's new people at our school. Are you bored with none of your friends around? Mrs Paterson has had her baby,and it's a girl,so Mrs Tims is taking over for her.So we wish you The Best
 Bye Bye Bye !!!!!!!!!!!!!!!!!!!!!!!

11-09-2009 05:56 hour
Brenda

I'm going to sound like a broken record but ... It's another day closer to the end of treatment guys. Hip Hip Horay!!! Keep on going, keep on going. I am to go Paihia today to a media launch, I will be on a boat at Opua and they plan to go out to Urapukapuka Island and plant trees, well you know how the weather has been so glorious, yeah, not today. Apparently it is going to be blowing a strong wind today and I get terribly terribly seasick. My middle nick name in my family is Chuckie!!! I have been awake since 2am thinking about it, can't sleep so thought I would get up at 5 and pack etc. Thank goodness for make up eh! So, strong warm ones coming at ya again today guys. Thinking of ya, Brenda  

10-09-2009 09:39 hour
Auntie Teri & Uncle Graham ( Gold Coast , Australia )

Nearly there Rors!!  Think of all the fun you and Sam will have when he gets there!  Stay strong matey - big hugs and lots of love - Auntie Teri & Uncle Graham - xxxx

10-09-2009 07:58 hour
Brenda

Yeay. another new day, another day closer to the end treatment, another day closer to living a normal family life. Yeay!!! Warm, strong ones comin at ya!! Brenda

09-09-2009 21:45 hour
Denise and Miller Family ( NZ )

Hey guys, it just sounds really tough for you all. As a parent I just cannot imagine having the strength and courage you have had Leigh -and you too Sean. I feel exhausted just reading about your days. You are such a special family and I always thought that. All our love, Denise, Andrew, Brad, Lewis and ColeXXXXX

09-09-2009 20:26 hour
Matai ( Waihue )

hi rory and famiy thank you for my birthday wishes I came second in the NW xcountry, and the first DPS boy home.we send healing love to you all from the Newman-Horne's

09-09-2009 17:01 hour
Jeni Gorrie ( Dargaville , nz )

Wow, Leigh I can't say that I know how you feel, I can only send love and hope that the road gets easier for you all. One thing that comes to mind as I read your entries is a friend of mine who was diagnosed as terminal 10 yrs ago. She has been through the things that Rory is going through, and yes she is still with us. I understand Rory has a good chance that with treatment he can beat this, and you, as a family are fighting with him which is so important. My friend was never given the possibility of recovery and yet she has fought this for 10 yrs (that in itself is winning). The bit that may be helpful to you at this time is the fact that we thought we might loose her more than once, not from the cancer but from the treatments!. One time in particular she even said she was aware that she could decide to 'go' but chose to try again. I have seen her body waste away to skin on bone and not be able to walk from the couch to the coffee table (2feet). She recovered yet again and her body rebuilt itself to a point where her body weight was healthier than she'd been in her life. As hard as it is to muster that strength and positive energy when you've been immersed in it for this long - have faith that the human body can rebuild itself even when all odds are against it. Rory will need everyone to keep the mental determination up for him while he is weak, and so will you Sean and Sam. I'm so glad you've allowed so many people to enter the fight with you because I really believe it all helps. My friend declined further chemo because it wasn't going to cure her (the doctors said this), and she pursued other treatments with varying results, which I'd be happy to talk to you about if you want any info after Rory has finished his treatment at hospital. I feel guilty saying 'keep strong and determined' when I'm sitting here with my own things around me and my kids are healthy, but it really is the only way.
Kia kaha, kia kaha, kia kaha..xxx Jeni.