Rory Gardiner's Webpage

10, Sep, 2009

Thursday 10th September 2009


Rory's sore stomach and diahorea returned last night.  It was obvious we wouldn't be leaving the ward.  The Nurse stopped his milkshake and placed him back on iv fluids.  The Doctor this morning said the chemo, followed by the vomiting/diahorea has destroyed the lining of his stomach and it will take time to heal, likely in parallel with the recovery of his immune system (increasing white blood cell count).  Rory can't continue to lose weight, he was another 200 grams lighter today.  The Doctors are going to try the simplest elemental feed through the ng tube at 5ml/hr and see if he can keep this little amount in as its good for his gut and kidneys to keep working.  They are also going to start feeding him a cocktail through his Hickman line straight into his artery.  This provides nutrition straight into his blood stream and by-passes his gut.  Hopefully it will stem the weight loss but it may take a few days to take effect.  Apparently side effects to the stomach are not uncommon with cancer kids, and there can be a number of children on the ward at any one time being fed through their Hickman line.  It's almost unbelievable, like something out of a sci-fi movie. 

Another bout of diahorea at lunchtime delayed the start of the elemental feed.  The Nurse may start it tonight before bed if Rory hasn't had any more episodes.  Amy the Nutritionist has been in today to talk to us about what is occurring, and Rachel the physio put her head in the door to see how Rory was. 

I collected a sample when Rory had diahorea at lunchtime, and was shocked late this afternoon when they told me it had tested positive for rotovirus, after the previous two samples tested negative.  Rory and I are now in isolation.  We have to wait for the virus to pass, and it is highly contagious.  The Nurses will keep Rory hydrated and a number of compounds have been added to the iv cocktail to aid recovery.  Considering all this Rory is remarkably well.  He is tired, and when he is sick very sore and miserable, but other than this he continues to show his cheeky personality. 

The high light of the day for Rory and I was a visit by Dianne Zuchetto, a good friend of mine from Whangarei District Council.  Dianne came bearing treats for both of us, her patient warm and funny personality, and lots of news.  Having her here made the day go a lot quicker.  She showed a hidden talent for story telling, and games, very nearly beating Rory at Star Wars Trump cards. (Thanks heaps Dianne).  Late this afternoon Rory got a finger prick blood test, and growled the Nurse and I while we changed the dressing which holds his ng tube in place on his face.  It is a very tender place to pull a sticky dressing off (his cheek), and the ng tube is super sensitive in his nose.