Rory Gardiner's Webpage

14, Apr, 2009

14th April 2009

Rory improves a little more each day.  It is great to see him with a smile on his face, and being able to walk short distances only holding our hands.  He continues to receive iv antibiotics (poor Sean did the 1am shift last night up to Starship). 

This morning the two parts of his radiotherapy mask were fitted together (yes Kody he was awake) and he had a test run in the CT machine.  They had to tattoo four dots on his back (which are permanent) so they can line him up during his treatment.  He was disappointed he didn't receive a dragon!

Today Dr Jason (I must get a photo of him) took a sample of csf from the bump (like a blister) which has formed under Rory's stitches on the back of his head to check for any infection.  Rory was quiet, still and brave as always.  It amazes me how he can be this way, yet completely the opposite when it comes to waiting around (and there is plenty of that!).  He hates being bored and doing nothing.  It must be frustrating having had such an active stimulating life, with heaps of time outdoors, to be faced with the opposite every day.  We are getting a bit of a reputation on the Ward for disappearing all the time (which isn't the done thing!). 

Unfortunately Rory's temperature spiked again this afternoon, just before 2pm, when we thought we had gotten away with the first day without it.  There is no chance of getting home until he goes 48 hours with no spikes.  They can then remove the iv and he can take the antibiotic orally.  Radiotherapy is scheduled to begin on the 5th of May, and we will need to be back one week before this so they can put in a permacath and harvest his bone marrow. 

Taranaki Daily News published a lovely article on Rory's journey in their newspaper yesterday.