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Rory Gardiner's Webpage

20, Nov, 2009

Friday 20th November 2009


 

Rory took a decision out of our hands this morning when he vomited up the ng tube.  This occured soon after he woke at 6am.  It has pleased and freaked us out at the same time.  He is now free of it, the persistent stares of passersby, the drug maxilon 3x a day, and the milkshake every night (and the associated waking to go to the loo, and occasional vomiting).  But he is now under pressure to eat enough to maintain his weight, which he is far from doing.  He is starting to drink and eat but takes bites half the size of the old five cent piece, and is full or put off after only a very small amount.  As a parent it is hard to know how to behave, we have to encourage and enforce eating but not to the point where he feels pressured and vomits, or is totally put off. 

Rory had a finger prick blood test this morning and his platelets are holding at 47.  His white blood count has fallen to 9.7 but is acceptable.  His haemoglobin has fallen to 88.  I spoke to Starship and they said everything is ok at the moment.  He doesn't need GCSF or a transfusion, but we will repeat the blood test on Monday.  The Doctors are keen to let Rory's body recover on its own.  Rory is going to be seen at the Child Health Clinic at Whangarei Hospital on a Monday for the next four weeks.  As he didn't need the GCSF we were able to remove the insuflon (plug) from his leg.  The only medical aparatus he has left is the Hickman line in his chest! 

We spent the morning in town doing jobs, and somehow I came home from the Warehouse with two foam swords.  The boys have been using them to hit a balloon around the lounge.  I visited an Osteopath to try and put my body back together.  Roseanne said I had a few knots, and bones out of alignment, which isn't surprising given the past few months.  Roseanne has a gift, I think she can see inside your body with her hands, and is able to put things right.  Her treatment coupled with the cold has left me feeling like a jellyfish, without a back bone or strength.  I feel I could easily fall asleep if I put my head down.  I have found this is a typical pattern, you tough it out, put up with whatever you have to, and draw more than you thought you could when there is a crisis, but once the pressure comes off your body succumbs to illness and fatigue.  Hopefully it will be short lived. 

We are going out tonight for a treat, the Whangarei District Council staff concert.  It happens every two years, and is a fun compilation of song, dance and skits put on by Council staff.  Two years ago the Department I work in dressed as the Village People and lip synched and danced their best known hits on the stage at Forum North.  I know the boys are going to enjoy it.