Rory Gardiner's Webpage

01, Jul, 2009

Wednesday 1st July


Happy Birthday Sacha!  The boys snuck into bed this morning and gave Sean and I a pinch and a punch for the first of the month.  I woke up feeling miserable with a head cold so of course was caught out (or that's my excuse).  I think the score is 5-2 to them.  Rory caught the bus to school again this morning.  He was relaxed when I arrived at school.  He delights in beating Kody and Korie to class but I never seem to make it.  Rory did the question box in class this morning, he had brought in a bullet casing to put in the box.  The rest of the class asked questions to guess what it was.  He also brought in a present for Pete as it's his birthday tomorrow.  Today is my niece Sacha's 7th birthday.  We were supposed to meet Mr Law the Neurosurgeon in clinic at Starship tomorrow but he is stuck in Australia so they have postponed until the 30th of July.  This makes me a little nervous as I have many questions.  Rory's shunt wound is still healing slowly and I feel reassured when the Doctors tell me it looks fine. 

I saw evidence of the residual effects of Rory's treatment in class yesterday.  He is so eager to fit in, to keep up, and to succeed.  If things don't go right he panics and gets wound up and distressed.  He couldn't find his maths book yesterday, and no other book would do, so there were tears under his desk lid which he didn't want the other children to see.  He was also panicing about being kept in at lunch time when he didn't complete his work and pack up in time.  Even walking from place to place around the school with the class he struggles.  Rory can walk steadily but at a slower pace than the other children.  When pushed to walk at their speed his movements become jerky and he struggles to keep up.  He is more at risk of hurting himself by falling or spraining muscles in this situation.  Several times he has started at the front of the line only to end up at the back.  I picked up a book for his teacher from the Child Cancer Foundation about teaching children with brain tumours.  When he re-enters school next year I will have to work closely with his teacher to assimilate him.  Part of the problem is he is out of routine and has to ask the other children where things are, which books to use, and what activity they are working on.  This is easily remedied with time.  Although he is still bright, and gets stronger every day, long-term he is unlikely to be able to keep the pace of his peers.  Sean and I have discussed ways of making sure he succeeds and is fulfilled even though he is different.